Parents and Special Education Services, A Series: Part 4

When considering individuals who receive SPED services, it’s important to note that not all disabilities are visible, and that disabilities come in all shapes and sizes. Another aspect to take into consideration is that people with disabilities can be any age. It doesn’t matter the age, gender, shape, or size of the disability: the fact of the matter is that people with disabilities have the right to be respected and treated fairly. When a student has an Individualized Education Plan (IEP), teachers are legally expected to uphold the terms of that plan, and are required to provide necessary accommodations for their students who have an IEP.

Today’s parent interview is with Bobbie, who has a son with an IEP who is in high school. He is an active, smart young man who has a learning disability. His disability isn’t physically visible, and many people do not even know that learning can be difficult for him. All of his teachers are made aware of his disability and are given a copy of the accommodations he is allowed to receive. Unfortunately, he has had a teacher who did not do their best to uphold the terms of his IEP, which led to frustration for both Bobbie and her son.

Please tell me a little about your child who is receiving Special\Education services. (Age, grade, etc.) 

My child is 15 years old and will be a sophomore this school year. He received his IEP when he was 6 years old in first grade.

What kind of services does your child receive? (general education withpull out services for speech/math/reading, etc., behavior unit, mild-moderate life skills class, etc.) 

My child is currently receiving his services in a co-taught general education math and ELA classroom. When he was in elementary school it was pull out services for reading and math.

What has been the most difficult thing about navigating the SPED world in schools? 

I feel that Elementary school teachers helped with IEPs way better than most secondary school teachers. Many of the secondary teachers, especially those who teach subjects like science and social studies do not follow a student’s IEP accommodations as well as they should. I even had a 9th grade science teacher attend the IEP, and he failed to follow the accommodation of hard copy of notes provided, because he said they could be downloaded from his website, but we were never able to find where to access, and his response was always “they are on my website.” His website was not organized in a way to find anything UNLESS you knew the exact title of his lesson. No dates were provided. This “accommodation” in  his eyes was being met, but was met with a task that was far harder than just making the notes for my child. So I think the most difficult thing is getting secondary teachers to follow ALL of the accommodations needed, and to provide them in a way that makes their learning experience easier and not harder. 

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

I have felt like my voice is heard in the meetings, and that my opinion to help my child matters. I feel like when I reach out to his SPED file holder, I get a response and help with my child. 

How do you feel other students and teachers respond to and interact with your child? Do you feel like there is a good amount of inclusiveness at your child’s school? 

Most people do not know that my child has an IEP. I do feel that some teachers do everything they can to help my child find success, but as mentioned above, there are some who do not make their educational needs easier, but rather make it harder for them to access the content.  My child was able to maintain straight A’s in his classes, but it wasn’t from the help of his science teacher especially. He knew my child was reading 4 grade level below, and did nothing to help him. 

As a parent, what are some ways you advocate for your child to make sure they are in the least restrictive environment and receiving the services they need and deserve? 

As a parent, I make sure that all of the teachers know that my child has an IEP and what accommodations have worked the very best for my child in the past. I let them know that I am available to meet, or talk with them to make sure that my child can learn best in their classrooms. I am also a teacher, so I understand and know how important communication with teachers are to ensure that my child’s needs are being met. 

If you could tell one (or two or more) thing(s) to people who don’t have much experience with working with children with disabilities ofany kind and severity, what would you tell them? 

Children with learning disabilities can do what their peers are doing with enough supports/ accommodations. They can also be students with straight A’s who work extremely hard to learn the content. They are kids who just want others to see them as they would see any other child. They have the ability to love others and to be amazing friends to those around them.

Thank you, Bobbie! I can only imagine how difficult it would be to have a teacher who didn’t do their best to accommodate the needs of students receiving SPED services. I’m impressed with her son’s determination and hard work to succeed despite the lack of help from a teacher. Way to go!

This post is part of a series of posts of interviews with parents who have a child who receives special education services. You can find previous posts here, here, and here.

Parents and Special Education Services, A Series: Part 3

So often when we think of special education, we only think about the individuals with the disability. In reality, however, there are many more people involved in the education and advocacy for these individuals. Part of that team includes the parents and caregivers of those with disabilities. For the past couple of weeks, I have been interviewing parents and sharing their experiences with the SPED system. You can find previous posts here and here.

Today’s post is from an interview with Marina, a former second grade teacher and mom to an adorable boy who has been diagnosed with Williams Syndrome. Let’s see what she has to say!

Please tell me a little about your child who is receiving Special Education services. (Age, grade, etc.)

K. just turned 5 and will be attending kindergarten in the fall. He has attended 2 years of SPED preschool in our district and was with early intervention before that. 

What kind of services does your child receive? (general education with pull out services for speech/math/reading, etc., behavior unit, mild-moderate life skills class, etc.)

K. will be in the least restrictive special class for kindergarten. It is called a Core Integrated Class. It is full time with a special ed teacher, smaller class size, and 2-3 paraprofessionals. In addition to academic support he also receives speech therapy, occupational therapy, and physical therapy through the district during school. 

What has been the most difficult thing about navigating the SPED world in schools?

The most difficult thing about navigating the SPED world in schools has been knowing the right questions to ask in order to receive the best services and make the best placement decisions. There is a lot of lingo in the SPED world that makes sense to those who work in it for their job but as a parent it has to be simplified and clarified which I have really had to ask for. The services are of course there but no one is a better advocate for your child than you are so it is crucial to ask all of the questions to stay informed of all of your options. 

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

The most rewarding part about working with various SPED services has been getting to watch the progress. I have been able to see how hard the whole team (teachers, aides, therapists, families) works together. Everyone celebrates the smallest progress and I truly believe that’s how the bigger goals are accomplished. 

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

Our experience so far has been nothing but amazing as far as teacher and student interactions. Teachers in other classes know who K. is and say hi to him often which makes his day. I wouldn’t say they haven’t been inclusive but I do think that is difficult at a preschool age. I am excited for him to experience more inclusivity this fall as that is one goal of the structure of his upcoming placement. 

As a parent, what are some ways you advocate for your child to make sure they are in the least restrictive environment and receiving the services they need and deserve?

As a parent I recognize I am my child’s biggest advocate. I also recognize that there is a lot of emotion also tied to my child. I recently found a parent consultant and she helped be another set of eyes and ears. She was truly amazing. She and I met before the IEP meeting and discussed current goals, future goals, questions, concerns, and options. She attended the IEP meeting with me, took notes, and made sure I was feeling good about all of the decisions being made as well as got all of my questions answered. I involved myself as much as I could. Volunteered, helped with class parties, attended parent teacher conferences, asked for progress notes, worked on goals at home, etc. it is so much easier to advocate when you’re very involved. 

If you could tell one (or two or more) thing(s) to people who don’t have much experience with working with children with disabilities of any kind and severity, what would you tell them?

Find someone you can trust that does have experience and ask questions. For teachers, aides, educators: have compassion and patience not only for the child but the parents and families. It can be really overwhelming trying to navigate the SPED world on top of everything else that comes with having a child with special needs. Be an advocate, challenge the student appropriately and celebrate the small wins daily. To the parents: If you don’t feel good about something, speak up. Ask to see the data and have the data explained to you in a way you understand. I would highly recommend seeing if there is a parent consultant/advocate in your area. They are on your team and a good person to lean on. 

Thanks, Marina! I really appreciated her perspective, and loved that she was able to find a parent consultant to help her as she navigates the SPED world and making sure her son is getting the best care possible.

Next week, we will hear from a parent who has a child on an IEP in high school– I’m excited to hear her words of wisdom!

Parents and Special Education Services: A Series, Part 2

Last week, I started what will be a series of posts of interviews with parents who have children in Special Education. You can find the first post here. Our next interview is with McKenzie, who has a darling six year old boy who is receiving SPED services. Like me, McKenzie is also a former teacher who was familiar with SPED from a teacher’s perspective, and had to learn how to see it from a parent’s perspective. Let’s see what she had to say!

Please tell me a little about your child who is receiving Special Education services. (Age, grade, etc.)

E. is 6 years old. He just finished kindergarten this year and was on an IEP starting in preschool. He is on the IEP mainly for speech therapy, but also receives OT for a sensory processing disorder. He is also in the process of an autism diagnosis. 

What kind of services does your child receive? (general education with pull out services for speech/math/reading, etc., behavior unit, mild-moderate life skills class, etc.)

E. does OT in school as well as Speech Therapy. He is in the GenEd class the rest of the time. 

What has been the most difficult thing about navigating the SPED world in schools?

I wasn’t prepared for the emotional toll as a mom. I have a BS in Elementary Education and know the ins and outs of SPED and IEPs and this whole SPED world, but I knew it from a teacher’s perspective. I wasn’t as prepared to enter it as a parent, and it was emotional seeing it from that perspective. 

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

Watching E. improve and thrive in school has been incredible. We were extremely worried about sending him to public school and considered home schooling him, but watching him meet his goals on his IEP over time felt very rewarding. Working with the SPED team has also been incredibly rewarding because of the community and support they provide (more on that in the next q). 

How do you feel other students and teachers respond to and interact with your child? Do you feel like there is a good amount of inclusiveness at your child’s school?

The outpouring of love and support from everyone on his IEP team has been incredible! His speech teacher, his OT, the principal, the GenEd teacher, even the PE teacher and the secretaries… literally EVERYONE he interacts with has his best interests in mind and they all have wanted to rally together to give E. the best school experience possible. 

As far as other students, they are too young to even register that there are small things that set E. apart from everyone else. I do worry about how the students will start treating him in later grades when they see him wearing his noise cancelling headphones often, playing with fidgets constantly, and being able to walk out of the classroom for a break whenever he wants (per his IEP).

As a parent, what are some ways you advocate for your child to make sure they are in the least restrictive environment and receiving the services they need and deserve?

Right now, I’m not having to do much in the school to advocate for E. In fact, I think the teachers are advocating for him TO ME instead! I was nonchalant about getting him tested for autism because I’ve had so much push back from medical professionals to the point of one doctor saying flat out “He doesn’t have autism and you’re wasting your time trying to get him a diagnosis.” So I stopped pursuing it. But at an IEP meeting, they convinced me that I needed to push for it more and listed all of the ways an autism diagnosis could help him day to day and in the long run. Now we are back to working on an autism diagnosis with a new team of doctors, so that’s where I’ve spent all of my time advocating! 

If you could tell one (or two or more) thing(s) to people who don’t have much experience with working with children with disabilities of any kind and severity, what would you tell them?

That these kids are not bad, even though they sometimes may come across as that. Their brains are just working differently than yours, and that’s not something to be punished or looked down on, it’s something that needs tolerance, understanding, and love. And you’ll get much further with these kids acting out of tolerance, understanding, and love than you will any other way. 

Thank you, McKenzie! Thank you for reminding us that kids in SPED need our love and understanding!

Parents and Special Education Services: A Series

As a teacher, I became very familiar with the educator side of Special Education. I knew how to read an IEP, how to accommodate the various needs of the students in my classes who had an IEP, and what to watch for to determine if any particular student presented themselves with a need for additional testing and help. I felt pretty confident in my knowledge of the Special Education terms, processes, and procedures. 

It wasn’t until I became a parent of a child who needed Special Education services that I began to see the SPED world in a whole new light. Suddenly, the testing process, IEP meetings, IEP teams, and services became very personal. I was anxious about what this would all mean for my son. 

Almost four years ago, my then two year old was not hitting his speech milestones as expected. We started him with our county’s early intervention program and saw great progress. When he aged out of their program, they set us up with the school district, and let them take over services. He has been on an IEP ever since then, and has made remarkable progress. 

Fast forward a few years, and our youngest three children are all on an IEP and are receiving SPED services for speech. My previous anxieties about having children who qualify for and receive Special Education services have since gone away. I have come to see, now more than ever, that Special Education is an amazing resource, and that I have an incredible role as a parent to advocate for my children and to develop good relationships with their IEP team. 

I know I am not the only parent who has gone through these thoughts and emotions surrounding having a child placed in any kind of SPED services. I interviewed a few parents who have at a child who is currently receiving or have previously received Special Education services for any kind or severity of disability. Join me as I share a series of these interviews over the next couple of weeks! 

My first interview was with Brandy, whose son received speech therapy services for part of his elementary school years.

Please tell me a little about your child who is receiving Special Education services. (Age, grade, etc.)

* L. is 12 and going into 7th grade. He was in speech from 3rd to 6th.

What kind of services does your child receive? (general education with pull out services for speech/math/reading, etc., behavior unit, mild-moderate life skills class, etc.)

* He was in general education with pull out for speech.

What has been the most difficult thing about navigating the SPED world in schools?

* When we first started I knew almost nothing about SPED lingo or the different tools and tests used. Going in for IEPs was difficult when I didn’t feel like I understood what was happening and therefore didn’t know how to be a good advocate for my child.

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

* Having a team of people who care about my child and are working to help him grow has been awesome.

How do you feel other students and teachers respond to and interact with your child? Do you feel like there is a good amount of inclusiveness at your child’s school?

* Inclusivity is huge at my kids’ school. L’s teachers have been super helpful with input during IEP meetings and with helping me know how to best advocate for additional help and testing where needed.

As a parent, what are some ways you advocate for your child to make sure they are in the least restrictive environment and receiving the services they need and deserve?

* Being in speech, my child was already in a minimally restrictive environment. He was only pulled, at most, 10 minutes, twice a week. I feel like my kids’ school does a great job of getting students their service time, while making sure they aren’t missing areas of necessary general education.

If you could tell one (or two or more) thing(s) to people who don’t have much experience with working with children with disabilities of any kind and severity, what would you tell them?

  • Love and caring always comes first. Children can’t effectively learn and grow without it. Once they start picking up on the skills they’ve been working towards, it’s so rewarding to see the pride they take in themselves.

I really enjoyed hearing from Brandy about her experience with the Special Education department in her son’s school. It’s always so great to hear about teachers and support staff who are genuinely concerned with the progress of their students! 

Thank you, Brandy, for sharing your experience!

The Benefits of Peer Tutoring Programs

Luke was a student of mine many years ago. I still remember his tussled blonde hair, glasses, and sweet disposition. Third period that year was a better place because of him. Luke didn’t get to go to eight different classes like most of his peers; in fact, he only got to attend three or so. Luke was a student in our school’s moderate to severe Life Skills Special Education class. He had a disability that made it harder for him to learn and perform at the same level as his same aged peers. But did this stop Luke from trying his best? Absolutely not! Did this disability stop his peers from including him and helping him? It sure didn’t! I watched countless kids defy the “norm” of teenage behavior and go out of their way to help Luke and other kids like him. It was beautiful to watch. 

One student in particular, Lily, was assigned to be his “buddy” for his time in my class. Our school had a peer tutor program, which allowed mainstream ed students to voluntarily use one of their elective credits for a term to accompany a special needs student to a class and help them during that period. Peer tutors would sit next to these students and help them stay on task, help make sure they had the papers and supplies that they needed, and help them in any other way that was needed. 

The peer tutor program benefited everyone involved. For the special needs student, it gave them a friend to rely on during the class and gave them a sense of belonging. Putting SPED students in the least restrictive environment is essential for development and progress. Peer tutors benefited as well, as it gave them a sense of purpose and pride. They were given the opportunity to work one on one with the most special kids in the school. It also gave them a chance to serve fellow students. The Life Skills teachers were able to breathe easier knowing that their students were in good hands when they got to go to mainstream classes. The mainstream teachers got the chance to witness a special relationship form, and also got the privilege of having such special kids in the classroom. Logistically, having a peer tutor in the room allowed the teacher to be able to continue teaching without having to stop as often since the peer tutor could assist their buddy. The other students in the class also benefited from the program because they got to see the example set by their peers who had given up time to help others. 

I don’t know of a single student who has participated in a peer tutor type program who hasn’t come out a better person. It really is such a unique and beneficial opportunity. I realize it isn’t for everyone, but for those interested, it can be a great chance to help others and make a difference for students who otherwise often get overlooked. 

I know there are programs like this in secondary schools across the nation. If you aren’t familiar with your school’s program, ask a counselor or the Special Education teachers at your school; I’m sure they’d love to educate you on the ways that mainstream students can help their peers.

Introducing Shoshana Folic: The 2022 Scholarship Top Recipient

This is part of a series of blog posts introducing you to our 2022 Build A Better Future scholarship recipients and their projects. We hope you will find their stories as inspiring as we do! For information on our scholarship, click here.

The final scholarship awardee I have for you is Shoshana Folic! Shoshana’s project, Wishing’ U Well, earned her our top spot; which means that in addition to her $10,000 scholarship, she was awarded a $5,000 grant to continue funding her project.

From a very young age, Shoshana began noticing a lack of resources made available to the special needs community. Even before she started Wishing’ U Well, she volunteered with the Best Buddies organization, which offered her valuable insight into the needs of the community and the issues they face. When the COVID-19 pandemic hit, it exacerbated the disparity and Shoshana knew she needed to do more. She started the Wishing’ U Well platform at the age of fifteen, using her skills as a STEM student to maximize the resources that she wanted to make available. To quote Shoshana directly,

“Wishing’ U Well is a free online platform that is focused on improving the mental, physical, social, and spiritual well-being of those with intellectual or developmental disabilities. The Wishing’ U Well website is equipped with a multitude of different resources, sponsors, and social meetings between Florida high school volunteers and the special needs community.”

The website includes several sections, including workout tips and videos, basic nutrition information, coloring pages and playlists designed to encourage relaxation, mantras and affirmations, and–my personal favorite–the Fun With Friends program. Fun With Friends matches a special needs individual with a high school volunteer based on interests and hobbies and allows them to meet once a week via Zoom to talk, laugh, and bond with each other. Wishing’ U Well also hosts virtual group activities, such as drawing and cooking classes.

When it first launched, Wishing U’ Well only had five members in the special needs community, but has now reached over 850 special needs members from 17 different countries. They have also had over 100 high school students volunteer for the Fun With Friends program. Shoshana is actually trying to encourage more special needs members to join this community, as they have more volunteers than they know what to do with.

Moving forward, Shoshana would like to build up her network of sponsors and content creators to spread the word, increase special needs engagement, and supply even more resources. If you are (or know) someone who might be interested in sponsoring, promoting, or creating content for the Wishing’ U Well organization, you can send an email to shoshana.wishinguwell@gmail.com. Sponsors can be anyone from businesses, non-profits, sports teams, and social media influencers.

Likewise, if you know someone in the special needs community who you think could benefit from the resources provided by the Wishing’ U Well organization (hint: that’s everyone!), or if you would like additional information, please visit the official website: https://www.wishinguwell.org/

Wishing’ U Well can also be found on the following social media sites:

Instagram: wishing.u.well

Facebook: Wishing’ U Well

Twitter: @Wishinguwell_

A big congratulations to Shoshana for winning the top spot and a huge round of applause for her and all the work she has done in providing resources to the special needs community.

And The Award(s) Go To…

Going into this scholarship season, I knew that narrowing down the list of scholarship applicants to the five awardees would be difficult but I couldn’t have prepared myself for just how challenging it turned out to be. The levels of passion and selflessness reflected in the Design A Better Future projects that were submitted had me wishing I could award 16 scholarships, but alas, I slowly had to whittle the list down to five. There were many projects that got me thinking about my own interactions within my community and there were others that opened my eyes to issues I wouldn’t normally encounter in my day-to-day routine.

“The greatness of a community is most accurately measured by the compassionate actions of its members.”

Coretta Scot King

The scholarship was founded in the 2012-2013 school year as a way to show Honors Graduation’s support for our future leaders. Using the design thinking cycle, high school seniors created a project designed to improve their community. Work included a proposal, artifact/prototype, and final reflection. A $10,000 scholarship is awarded to the top five applicants toward their college tuition, with an additional $5,000 grant awarded to the top recipient to fund their project.

I will follow up with individual posts that dive into the details of the winning submissions soon, but without further ado, I am so excited to introduce you to the 2022 Design A Better Future Scholarship awardees:

  • Shoshana Folic: Wishing’ U Well (Shoshana is our top recipient and will receive an additional $5,000 grant to continue funding her project).
  • Mia Gregory: Pass It On Bags
  • Brooklyn Conrad: Feeding Growing Minds For A Healthy Future
  • Michael Wilson: Rim Country Chapter of the Arizona Old Time Fiddler’s Association
  • Christian Duckworth: Foldable Dome Homes

A hugely heartfelt thank you to all who took the time to apply for our scholarship and for the work you have done and will continue to do within your community. I truly enjoyed reading each submission and being shown ways I can help my own community. I hope we all will strive to build up those around us, even if it’s just smiling at the people you pass on the street.

“The smallest act of kindness is worth more than the greatest intention.”

Oscar Wilde