Parents and Special Education Services, A Series: Part 4

When considering individuals who receive SPED services, it’s important to note that not all disabilities are visible, and that disabilities come in all shapes and sizes. Another aspect to take into consideration is that people with disabilities can be any age. It doesn’t matter the age, gender, shape, or size of the disability: the fact of the matter is that people with disabilities have the right to be respected and treated fairly. When a student has an Individualized Education Plan (IEP), teachers are legally expected to uphold the terms of that plan, and are required to provide necessary accommodations for their students who have an IEP.

Today’s parent interview is with Bobbie, who has a son with an IEP who is in high school. He is an active, smart young man who has a learning disability. His disability isn’t physically visible, and many people do not even know that learning can be difficult for him. All of his teachers are made aware of his disability and are given a copy of the accommodations he is allowed to receive. Unfortunately, he has had a teacher who did not do their best to uphold the terms of his IEP, which led to frustration for both Bobbie and her son.

Please tell me a little about your child who is receiving Special\Education services. (Age, grade, etc.) 

My child is 15 years old and will be a sophomore this school year. He received his IEP when he was 6 years old in first grade.

What kind of services does your child receive? (general education withpull out services for speech/math/reading, etc., behavior unit, mild-moderate life skills class, etc.) 

My child is currently receiving his services in a co-taught general education math and ELA classroom. When he was in elementary school it was pull out services for reading and math.

What has been the most difficult thing about navigating the SPED world in schools? 

I feel that Elementary school teachers helped with IEPs way better than most secondary school teachers. Many of the secondary teachers, especially those who teach subjects like science and social studies do not follow a student’s IEP accommodations as well as they should. I even had a 9th grade science teacher attend the IEP, and he failed to follow the accommodation of hard copy of notes provided, because he said they could be downloaded from his website, but we were never able to find where to access, and his response was always “they are on my website.” His website was not organized in a way to find anything UNLESS you knew the exact title of his lesson. No dates were provided. This “accommodation” in  his eyes was being met, but was met with a task that was far harder than just making the notes for my child. So I think the most difficult thing is getting secondary teachers to follow ALL of the accommodations needed, and to provide them in a way that makes their learning experience easier and not harder. 

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

I have felt like my voice is heard in the meetings, and that my opinion to help my child matters. I feel like when I reach out to his SPED file holder, I get a response and help with my child. 

How do you feel other students and teachers respond to and interact with your child? Do you feel like there is a good amount of inclusiveness at your child’s school? 

Most people do not know that my child has an IEP. I do feel that some teachers do everything they can to help my child find success, but as mentioned above, there are some who do not make their educational needs easier, but rather make it harder for them to access the content.  My child was able to maintain straight A’s in his classes, but it wasn’t from the help of his science teacher especially. He knew my child was reading 4 grade level below, and did nothing to help him. 

As a parent, what are some ways you advocate for your child to make sure they are in the least restrictive environment and receiving the services they need and deserve? 

As a parent, I make sure that all of the teachers know that my child has an IEP and what accommodations have worked the very best for my child in the past. I let them know that I am available to meet, or talk with them to make sure that my child can learn best in their classrooms. I am also a teacher, so I understand and know how important communication with teachers are to ensure that my child’s needs are being met. 

If you could tell one (or two or more) thing(s) to people who don’t have much experience with working with children with disabilities ofany kind and severity, what would you tell them? 

Children with learning disabilities can do what their peers are doing with enough supports/ accommodations. They can also be students with straight A’s who work extremely hard to learn the content. They are kids who just want others to see them as they would see any other child. They have the ability to love others and to be amazing friends to those around them.

Thank you, Bobbie! I can only imagine how difficult it would be to have a teacher who didn’t do their best to accommodate the needs of students receiving SPED services. I’m impressed with her son’s determination and hard work to succeed despite the lack of help from a teacher. Way to go!

This post is part of a series of posts of interviews with parents who have a child who receives special education services. You can find previous posts here, here, and here.

Parents and Special Education Services, A Series: Part 3

So often when we think of special education, we only think about the individuals with the disability. In reality, however, there are many more people involved in the education and advocacy for these individuals. Part of that team includes the parents and caregivers of those with disabilities. For the past couple of weeks, I have been interviewing parents and sharing their experiences with the SPED system. You can find previous posts here and here.

Today’s post is from an interview with Marina, a former second grade teacher and mom to an adorable boy who has been diagnosed with Williams Syndrome. Let’s see what she has to say!

Please tell me a little about your child who is receiving Special Education services. (Age, grade, etc.)

K. just turned 5 and will be attending kindergarten in the fall. He has attended 2 years of SPED preschool in our district and was with early intervention before that. 

What kind of services does your child receive? (general education with pull out services for speech/math/reading, etc., behavior unit, mild-moderate life skills class, etc.)

K. will be in the least restrictive special class for kindergarten. It is called a Core Integrated Class. It is full time with a special ed teacher, smaller class size, and 2-3 paraprofessionals. In addition to academic support he also receives speech therapy, occupational therapy, and physical therapy through the district during school. 

What has been the most difficult thing about navigating the SPED world in schools?

The most difficult thing about navigating the SPED world in schools has been knowing the right questions to ask in order to receive the best services and make the best placement decisions. There is a lot of lingo in the SPED world that makes sense to those who work in it for their job but as a parent it has to be simplified and clarified which I have really had to ask for. The services are of course there but no one is a better advocate for your child than you are so it is crucial to ask all of the questions to stay informed of all of your options. 

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

The most rewarding part about working with various SPED services has been getting to watch the progress. I have been able to see how hard the whole team (teachers, aides, therapists, families) works together. Everyone celebrates the smallest progress and I truly believe that’s how the bigger goals are accomplished. 

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

Our experience so far has been nothing but amazing as far as teacher and student interactions. Teachers in other classes know who K. is and say hi to him often which makes his day. I wouldn’t say they haven’t been inclusive but I do think that is difficult at a preschool age. I am excited for him to experience more inclusivity this fall as that is one goal of the structure of his upcoming placement. 

As a parent, what are some ways you advocate for your child to make sure they are in the least restrictive environment and receiving the services they need and deserve?

As a parent I recognize I am my child’s biggest advocate. I also recognize that there is a lot of emotion also tied to my child. I recently found a parent consultant and she helped be another set of eyes and ears. She was truly amazing. She and I met before the IEP meeting and discussed current goals, future goals, questions, concerns, and options. She attended the IEP meeting with me, took notes, and made sure I was feeling good about all of the decisions being made as well as got all of my questions answered. I involved myself as much as I could. Volunteered, helped with class parties, attended parent teacher conferences, asked for progress notes, worked on goals at home, etc. it is so much easier to advocate when you’re very involved. 

If you could tell one (or two or more) thing(s) to people who don’t have much experience with working with children with disabilities of any kind and severity, what would you tell them?

Find someone you can trust that does have experience and ask questions. For teachers, aides, educators: have compassion and patience not only for the child but the parents and families. It can be really overwhelming trying to navigate the SPED world on top of everything else that comes with having a child with special needs. Be an advocate, challenge the student appropriately and celebrate the small wins daily. To the parents: If you don’t feel good about something, speak up. Ask to see the data and have the data explained to you in a way you understand. I would highly recommend seeing if there is a parent consultant/advocate in your area. They are on your team and a good person to lean on. 

Thanks, Marina! I really appreciated her perspective, and loved that she was able to find a parent consultant to help her as she navigates the SPED world and making sure her son is getting the best care possible.

Next week, we will hear from a parent who has a child on an IEP in high school– I’m excited to hear her words of wisdom!

Parents and Special Education Services: A Series, Part 2

Last week, I started what will be a series of posts of interviews with parents who have children in Special Education. You can find the first post here. Our next interview is with McKenzie, who has a darling six year old boy who is receiving SPED services. Like me, McKenzie is also a former teacher who was familiar with SPED from a teacher’s perspective, and had to learn how to see it from a parent’s perspective. Let’s see what she had to say!

Please tell me a little about your child who is receiving Special Education services. (Age, grade, etc.)

E. is 6 years old. He just finished kindergarten this year and was on an IEP starting in preschool. He is on the IEP mainly for speech therapy, but also receives OT for a sensory processing disorder. He is also in the process of an autism diagnosis. 

What kind of services does your child receive? (general education with pull out services for speech/math/reading, etc., behavior unit, mild-moderate life skills class, etc.)

E. does OT in school as well as Speech Therapy. He is in the GenEd class the rest of the time. 

What has been the most difficult thing about navigating the SPED world in schools?

I wasn’t prepared for the emotional toll as a mom. I have a BS in Elementary Education and know the ins and outs of SPED and IEPs and this whole SPED world, but I knew it from a teacher’s perspective. I wasn’t as prepared to enter it as a parent, and it was emotional seeing it from that perspective. 

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

Watching E. improve and thrive in school has been incredible. We were extremely worried about sending him to public school and considered home schooling him, but watching him meet his goals on his IEP over time felt very rewarding. Working with the SPED team has also been incredibly rewarding because of the community and support they provide (more on that in the next q). 

How do you feel other students and teachers respond to and interact with your child? Do you feel like there is a good amount of inclusiveness at your child’s school?

The outpouring of love and support from everyone on his IEP team has been incredible! His speech teacher, his OT, the principal, the GenEd teacher, even the PE teacher and the secretaries… literally EVERYONE he interacts with has his best interests in mind and they all have wanted to rally together to give E. the best school experience possible. 

As far as other students, they are too young to even register that there are small things that set E. apart from everyone else. I do worry about how the students will start treating him in later grades when they see him wearing his noise cancelling headphones often, playing with fidgets constantly, and being able to walk out of the classroom for a break whenever he wants (per his IEP).

As a parent, what are some ways you advocate for your child to make sure they are in the least restrictive environment and receiving the services they need and deserve?

Right now, I’m not having to do much in the school to advocate for E. In fact, I think the teachers are advocating for him TO ME instead! I was nonchalant about getting him tested for autism because I’ve had so much push back from medical professionals to the point of one doctor saying flat out “He doesn’t have autism and you’re wasting your time trying to get him a diagnosis.” So I stopped pursuing it. But at an IEP meeting, they convinced me that I needed to push for it more and listed all of the ways an autism diagnosis could help him day to day and in the long run. Now we are back to working on an autism diagnosis with a new team of doctors, so that’s where I’ve spent all of my time advocating! 

If you could tell one (or two or more) thing(s) to people who don’t have much experience with working with children with disabilities of any kind and severity, what would you tell them?

That these kids are not bad, even though they sometimes may come across as that. Their brains are just working differently than yours, and that’s not something to be punished or looked down on, it’s something that needs tolerance, understanding, and love. And you’ll get much further with these kids acting out of tolerance, understanding, and love than you will any other way. 

Thank you, McKenzie! Thank you for reminding us that kids in SPED need our love and understanding!

Doing What is Best For the Child #TeacherMom

I was dead set on holding him back for kindergarten.

My “middle of August” baby born four years ago has forced me to have kindergarten on my mind since the day I knew his due date. I guess that’s a normal thought process after spending years working towards a teaching degree and years beyond that in multiple classrooms and schools. 

Knowing he was a boy with a very late summer birthday, I knew I wanted to hold him back. I’ve had this decision set in my mind for years now. 

But then his course of schooling took some unexpected turns.

We had the developmental preschool in our school district put him through their testing to see if he could qualify for their free preschool, which is an amazing resource to have! 

After three separate days of testing he was able to gain acceptance into their program under an IEP for speech therapy, occupational therapy, and physical therapy, all while under close observation for a pending ADHD diagnosis. 

Whew. We just went from a child with a few sensory issues that we were working through to a full-on IEP and in-school services weekly. 

It was a whirlwind taking it all in and seeing where he landed with all of his testing, while then sitting through my first-ever IEP meeting as a parent and going through each of his goals. 

And still, the kindergarten question loomed over me. 

Because legally, this is the last year he can attend this preschool and receive in-school therapies as a preschooler, since next year he will turn 5. Therapies and schooling can only continue if he is in kindergarten.

So without the ability of sending him to preschool again as a five-year-old like I was hoping for, it leaves us with two options. Send him to kindergarten as a very new five-year-old, or keep him home for a year so that we can send him back to public school as a very new six-year-old. 

I know in many cities there would be many other courses of action that can be taken, like charter schools or private preschools and therapies. 

But unfortunately for us in our small town, those are not options we have. Keeping him from kindergarten next year would mean a full-year lapse in therapies that he so desperately needs more than I realized. 

It means redoing all of his testing to place him back into these therapies when he does start school again because everything would lapse and we would be starting over from scratch. 

I was set on holding him back for kinder. I was ready to put him into the public school system as a six-year-old, more prepared and ready to take on the world with an extra year of playing outside in the sticks and mud instead of sitting at a desk. 

But what wins out over what I want, is what he needs. Yes, I want to hold him back a year and I can see the benefits tenfold of sending him to kindergarten later. But I can see the better, higher benefits of sending him earlier, despite my wishes. 

Because in the end, the best decision you can make is whatever is best for the child. Always. 

Cover Photo: Mallory Wilcox