Parents and Special Education Services: A Series, Part 2

Last week, I started what will be a series of posts of interviews with parents who have children in Special Education. You can find the first post here. Our next interview is with McKenzie, who has a darling six year old boy who is receiving SPED services. Like me, McKenzie is also a former teacher who was familiar with SPED from a teacher’s perspective, and had to learn how to see it from a parent’s perspective. Let’s see what she had to say!

Please tell me a little about your child who is receiving Special Education services. (Age, grade, etc.)

E. is 6 years old. He just finished kindergarten this year and was on an IEP starting in preschool. He is on the IEP mainly for speech therapy, but also receives OT for a sensory processing disorder. He is also in the process of an autism diagnosis. 

What kind of services does your child receive? (general education with pull out services for speech/math/reading, etc., behavior unit, mild-moderate life skills class, etc.)

E. does OT in school as well as Speech Therapy. He is in the GenEd class the rest of the time. 

What has been the most difficult thing about navigating the SPED world in schools?

I wasn’t prepared for the emotional toll as a mom. I have a BS in Elementary Education and know the ins and outs of SPED and IEPs and this whole SPED world, but I knew it from a teacher’s perspective. I wasn’t as prepared to enter it as a parent, and it was emotional seeing it from that perspective. 

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

Watching E. improve and thrive in school has been incredible. We were extremely worried about sending him to public school and considered home schooling him, but watching him meet his goals on his IEP over time felt very rewarding. Working with the SPED team has also been incredibly rewarding because of the community and support they provide (more on that in the next q). 

How do you feel other students and teachers respond to and interact with your child? Do you feel like there is a good amount of inclusiveness at your child’s school?

The outpouring of love and support from everyone on his IEP team has been incredible! His speech teacher, his OT, the principal, the GenEd teacher, even the PE teacher and the secretaries… literally EVERYONE he interacts with has his best interests in mind and they all have wanted to rally together to give E. the best school experience possible. 

As far as other students, they are too young to even register that there are small things that set E. apart from everyone else. I do worry about how the students will start treating him in later grades when they see him wearing his noise cancelling headphones often, playing with fidgets constantly, and being able to walk out of the classroom for a break whenever he wants (per his IEP).

As a parent, what are some ways you advocate for your child to make sure they are in the least restrictive environment and receiving the services they need and deserve?

Right now, I’m not having to do much in the school to advocate for E. In fact, I think the teachers are advocating for him TO ME instead! I was nonchalant about getting him tested for autism because I’ve had so much push back from medical professionals to the point of one doctor saying flat out “He doesn’t have autism and you’re wasting your time trying to get him a diagnosis.” So I stopped pursuing it. But at an IEP meeting, they convinced me that I needed to push for it more and listed all of the ways an autism diagnosis could help him day to day and in the long run. Now we are back to working on an autism diagnosis with a new team of doctors, so that’s where I’ve spent all of my time advocating! 

If you could tell one (or two or more) thing(s) to people who don’t have much experience with working with children with disabilities of any kind and severity, what would you tell them?

That these kids are not bad, even though they sometimes may come across as that. Their brains are just working differently than yours, and that’s not something to be punished or looked down on, it’s something that needs tolerance, understanding, and love. And you’ll get much further with these kids acting out of tolerance, understanding, and love than you will any other way. 

Thank you, McKenzie! Thank you for reminding us that kids in SPED need our love and understanding!

Parents and Special Education Services: A Series

As a teacher, I became very familiar with the educator side of Special Education. I knew how to read an IEP, how to accommodate the various needs of the students in my classes who had an IEP, and what to watch for to determine if any particular student presented themselves with a need for additional testing and help. I felt pretty confident in my knowledge of the Special Education terms, processes, and procedures. 

It wasn’t until I became a parent of a child who needed Special Education services that I began to see the SPED world in a whole new light. Suddenly, the testing process, IEP meetings, IEP teams, and services became very personal. I was anxious about what this would all mean for my son. 

Almost four years ago, my then two year old was not hitting his speech milestones as expected. We started him with our county’s early intervention program and saw great progress. When he aged out of their program, they set us up with the school district, and let them take over services. He has been on an IEP ever since then, and has made remarkable progress. 

Fast forward a few years, and our youngest three children are all on an IEP and are receiving SPED services for speech. My previous anxieties about having children who qualify for and receive Special Education services have since gone away. I have come to see, now more than ever, that Special Education is an amazing resource, and that I have an incredible role as a parent to advocate for my children and to develop good relationships with their IEP team. 

I know I am not the only parent who has gone through these thoughts and emotions surrounding having a child placed in any kind of SPED services. I interviewed a few parents who have at a child who is currently receiving or have previously received Special Education services for any kind or severity of disability. Join me as I share a series of these interviews over the next couple of weeks! 

My first interview was with Brandy, whose son received speech therapy services for part of his elementary school years.

Please tell me a little about your child who is receiving Special Education services. (Age, grade, etc.)

* L. is 12 and going into 7th grade. He was in speech from 3rd to 6th.

What kind of services does your child receive? (general education with pull out services for speech/math/reading, etc., behavior unit, mild-moderate life skills class, etc.)

* He was in general education with pull out for speech.

What has been the most difficult thing about navigating the SPED world in schools?

* When we first started I knew almost nothing about SPED lingo or the different tools and tests used. Going in for IEPs was difficult when I didn’t feel like I understood what was happening and therefore didn’t know how to be a good advocate for my child.

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

* Having a team of people who care about my child and are working to help him grow has been awesome.

How do you feel other students and teachers respond to and interact with your child? Do you feel like there is a good amount of inclusiveness at your child’s school?

* Inclusivity is huge at my kids’ school. L’s teachers have been super helpful with input during IEP meetings and with helping me know how to best advocate for additional help and testing where needed.

As a parent, what are some ways you advocate for your child to make sure they are in the least restrictive environment and receiving the services they need and deserve?

* Being in speech, my child was already in a minimally restrictive environment. He was only pulled, at most, 10 minutes, twice a week. I feel like my kids’ school does a great job of getting students their service time, while making sure they aren’t missing areas of necessary general education.

If you could tell one (or two or more) thing(s) to people who don’t have much experience with working with children with disabilities of any kind and severity, what would you tell them?

  • Love and caring always comes first. Children can’t effectively learn and grow without it. Once they start picking up on the skills they’ve been working towards, it’s so rewarding to see the pride they take in themselves.

I really enjoyed hearing from Brandy about her experience with the Special Education department in her son’s school. It’s always so great to hear about teachers and support staff who are genuinely concerned with the progress of their students! 

Thank you, Brandy, for sharing your experience!

The Benefits of Peer Tutoring Programs

Luke was a student of mine many years ago. I still remember his tussled blonde hair, glasses, and sweet disposition. Third period that year was a better place because of him. Luke didn’t get to go to eight different classes like most of his peers; in fact, he only got to attend three or so. Luke was a student in our school’s moderate to severe Life Skills Special Education class. He had a disability that made it harder for him to learn and perform at the same level as his same aged peers. But did this stop Luke from trying his best? Absolutely not! Did this disability stop his peers from including him and helping him? It sure didn’t! I watched countless kids defy the “norm” of teenage behavior and go out of their way to help Luke and other kids like him. It was beautiful to watch. 

One student in particular, Lily, was assigned to be his “buddy” for his time in my class. Our school had a peer tutor program, which allowed mainstream ed students to voluntarily use one of their elective credits for a term to accompany a special needs student to a class and help them during that period. Peer tutors would sit next to these students and help them stay on task, help make sure they had the papers and supplies that they needed, and help them in any other way that was needed. 

The peer tutor program benefited everyone involved. For the special needs student, it gave them a friend to rely on during the class and gave them a sense of belonging. Putting SPED students in the least restrictive environment is essential for development and progress. Peer tutors benefited as well, as it gave them a sense of purpose and pride. They were given the opportunity to work one on one with the most special kids in the school. It also gave them a chance to serve fellow students. The Life Skills teachers were able to breathe easier knowing that their students were in good hands when they got to go to mainstream classes. The mainstream teachers got the chance to witness a special relationship form, and also got the privilege of having such special kids in the classroom. Logistically, having a peer tutor in the room allowed the teacher to be able to continue teaching without having to stop as often since the peer tutor could assist their buddy. The other students in the class also benefited from the program because they got to see the example set by their peers who had given up time to help others. 

I don’t know of a single student who has participated in a peer tutor type program who hasn’t come out a better person. It really is such a unique and beneficial opportunity. I realize it isn’t for everyone, but for those interested, it can be a great chance to help others and make a difference for students who otherwise often get overlooked. 

I know there are programs like this in secondary schools across the nation. If you aren’t familiar with your school’s program, ask a counselor or the Special Education teachers at your school; I’m sure they’d love to educate you on the ways that mainstream students can help their peers.