Category: School Resources

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Parents and Special Education Services, A Series: Part 3

So often when we think of special education, we only think about the individuals with the disability. In reality, however, there are many more people involved in the education and advocacy for these individuals. Part of that team includes the parents and caregivers of those with disabilities. For the past couple of weeks, I have been interviewing parents and sharing their experiences with the SPED system. You can find previous posts here and here.

Today’s post is from an interview with Marina, a former second grade teacher and mom to an adorable boy who has been diagnosed with Williams Syndrome. Let’s see what she has to say!

Please tell me a little about your child who is receiving Special Education services. (Age, grade, etc.)

K. just turned 5 and will be attending kindergarten in the fall. He has attended 2 years of SPED preschool in our district and was with early intervention before that. 

What kind of services does your child receive? (general education with pull out services for speech/math/reading, etc., behavior unit, mild-moderate life skills class, etc.)

K. will be in the least restrictive special class for kindergarten. It is called a Core Integrated Class. It is full time with a special ed teacher, smaller class size, and 2-3 paraprofessionals. In addition to academic support he also receives speech therapy, occupational therapy, and physical therapy through the district during school. 

What has been the most difficult thing about navigating the SPED world in schools?

The most difficult thing about navigating the SPED world in schools has been knowing the right questions to ask in order to receive the best services and make the best placement decisions. There is a lot of lingo in the SPED world that makes sense to those who work in it for their job but as a parent it has to be simplified and clarified which I have really had to ask for. The services are of course there but no one is a better advocate for your child than you are so it is crucial to ask all of the questions to stay informed of all of your options. 

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

The most rewarding part about working with various SPED services has been getting to watch the progress. I have been able to see how hard the whole team (teachers, aides, therapists, families) works together. Everyone celebrates the smallest progress and I truly believe that’s how the bigger goals are accomplished. 

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

Our experience so far has been nothing but amazing as far as teacher and student interactions. Teachers in other classes know who K. is and say hi to him often which makes his day. I wouldn’t say they haven’t been inclusive but I do think that is difficult at a preschool age. I am excited for him to experience more inclusivity this fall as that is one goal of the structure of his upcoming placement. 

As a parent, what are some ways you advocate for your child to make sure they are in the least restrictive environment and receiving the services they need and deserve?

As a parent I recognize I am my child’s biggest advocate. I also recognize that there is a lot of emotion also tied to my child. I recently found a parent consultant and she helped be another set of eyes and ears. She was truly amazing. She and I met before the IEP meeting and discussed current goals, future goals, questions, concerns, and options. She attended the IEP meeting with me, took notes, and made sure I was feeling good about all of the decisions being made as well as got all of my questions answered. I involved myself as much as I could. Volunteered, helped with class parties, attended parent teacher conferences, asked for progress notes, worked on goals at home, etc. it is so much easier to advocate when you’re very involved. 

If you could tell one (or two or more) thing(s) to people who don’t have much experience with working with children with disabilities of any kind and severity, what would you tell them?

Find someone you can trust that does have experience and ask questions. For teachers, aides, educators: have compassion and patience not only for the child but the parents and families. It can be really overwhelming trying to navigate the SPED world on top of everything else that comes with having a child with special needs. Be an advocate, challenge the student appropriately and celebrate the small wins daily. To the parents: If you don’t feel good about something, speak up. Ask to see the data and have the data explained to you in a way you understand. I would highly recommend seeing if there is a parent consultant/advocate in your area. They are on your team and a good person to lean on. 

Thanks, Marina! I really appreciated her perspective, and loved that she was able to find a parent consultant to help her as she navigates the SPED world and making sure her son is getting the best care possible.

Next week, we will hear from a parent who has a child on an IEP in high school– I’m excited to hear her words of wisdom!

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Parents and Special Education Services: A Series

As a teacher, I became very familiar with the educator side of Special Education. I knew how to read an IEP, how to accommodate the various needs of the students in my classes who had an IEP, and what to watch for to determine if any particular student presented themselves with a need for additional testing and help. I felt pretty confident in my knowledge of the Special Education terms, processes, and procedures. 

It wasn’t until I became a parent of a child who needed Special Education services that I began to see the SPED world in a whole new light. Suddenly, the testing process, IEP meetings, IEP teams, and services became very personal. I was anxious about what this would all mean for my son. 

Almost four years ago, my then two year old was not hitting his speech milestones as expected. We started him with our county’s early intervention program and saw great progress. When he aged out of their program, they set us up with the school district, and let them take over services. He has been on an IEP ever since then, and has made remarkable progress. 

Fast forward a few years, and our youngest three children are all on an IEP and are receiving SPED services for speech. My previous anxieties about having children who qualify for and receive Special Education services have since gone away. I have come to see, now more than ever, that Special Education is an amazing resource, and that I have an incredible role as a parent to advocate for my children and to develop good relationships with their IEP team. 

I know I am not the only parent who has gone through these thoughts and emotions surrounding having a child placed in any kind of SPED services. I interviewed a few parents who have at a child who is currently receiving or have previously received Special Education services for any kind or severity of disability. Join me as I share a series of these interviews over the next couple of weeks! 

My first interview was with Brandy, whose son received speech therapy services for part of his elementary school years.

Please tell me a little about your child who is receiving Special Education services. (Age, grade, etc.)

* L. is 12 and going into 7th grade. He was in speech from 3rd to 6th.

What kind of services does your child receive? (general education with pull out services for speech/math/reading, etc., behavior unit, mild-moderate life skills class, etc.)

* He was in general education with pull out for speech.

What has been the most difficult thing about navigating the SPED world in schools?

* When we first started I knew almost nothing about SPED lingo or the different tools and tests used. Going in for IEPs was difficult when I didn’t feel like I understood what was happening and therefore didn’t know how to be a good advocate for my child.

As a parent, what has been the most rewarding or positive thing about working with SPED services in schools?

* Having a team of people who care about my child and are working to help him grow has been awesome.

How do you feel other students and teachers respond to and interact with your child? Do you feel like there is a good amount of inclusiveness at your child’s school?

* Inclusivity is huge at my kids’ school. L’s teachers have been super helpful with input during IEP meetings and with helping me know how to best advocate for additional help and testing where needed.

As a parent, what are some ways you advocate for your child to make sure they are in the least restrictive environment and receiving the services they need and deserve?

* Being in speech, my child was already in a minimally restrictive environment. He was only pulled, at most, 10 minutes, twice a week. I feel like my kids’ school does a great job of getting students their service time, while making sure they aren’t missing areas of necessary general education.

If you could tell one (or two or more) thing(s) to people who don’t have much experience with working with children with disabilities of any kind and severity, what would you tell them?

  • Love and caring always comes first. Children can’t effectively learn and grow without it. Once they start picking up on the skills they’ve been working towards, it’s so rewarding to see the pride they take in themselves.

I really enjoyed hearing from Brandy about her experience with the Special Education department in her son’s school. It’s always so great to hear about teachers and support staff who are genuinely concerned with the progress of their students! 

Thank you, Brandy, for sharing your experience!

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Student Food Pantries and Wellness Rooms: A Beacon of Light

It’s no secret that it’s downright hard to be a kid or teen in today’s world. There are so many things pulling for their attention and time, and basic needs shouldn’t be something they need to worry about. But for many kids, obtaining basic necessities are a cause of worry. Families experiencing financial hardship, homelessness, or domestic abuse, among other things, often have a difficult time providing the most basic human needs— food, clothing, hygiene items, and laundry facilities. 

No one should have to go without these things. Thankfully, many schools across the nation have implemented in-school food pantries and wellness rooms— a place students can go, free of charge, no questions asked, to get the things they need. 

These pantries provide snacks and other foods that students can take home with them so they don’t have to go hungry. Many schools offer both non-perishable and perishable foods and ingredients to prepare basic meals. 

One high school in Utah went a step further than just providing food and set up a teen room, which they call The Hub. Students can make an appointment to visit The Hub and can get food, hygiene items (soap, shampoo, toothbrush/paste, feminine hygiene products, and deodorant), clothing (socks, underwear/bras, shirts, and pants), and household items (toilet paper, paper towels, washcloths, towels, and blankets). They even have a washer and dryer on site for students to do their laundry during school hours. 

In addition to providing for the physical needs of their students, this high school also has a wellness room where students can go if they need a break and need to calm down. It’s a quiet place for students to regroup, do homework, or relax. What an amazing resource for these students! In a time of life when there are so many uncertainties and stressors, this school has seen a need and has sought to alleviate some stress for its students in need. 

This school is not the only school that hosts a program like this; they are just one example of the good that is out there and the love and concern for today’s youth. Thankfully, rooms like this seem to be on the rise as more and more schools become increasingly aware of the number of students whose physical needs are not being met. We know that when physical needs are met, other needs thrive too.

These programs and rooms are largely operated via donations and generosity from the public. Some schools work in connection with local food pantries and coalitions. Whatever the source of the necessities, it is heartwarming to see individuals and businesses share their resources to care for the youth in their communities. 

To find out if there are schools in your area that have programs or resources to combat food insecurity, contact your local food bank or local schools.